Monday, June 23, 2014

14 Months In, Travelling with TSW

Last week I went to the hot, dry dessert of Tucson Arizona for a little R & R....i.e Bible Conference.

I was pleasantly surprised that my skin didn't bother me at all on the journey.

When I first arrived I was a bit nervous about the water and dryness...hello?

To my pleasant surprise my skin was FINE.   Maybe a little dry, and I must confess I cheated and used a little lotion. But sorry my dry arms just weren't looking very hot with my sleeveless shirts y'all!!

I am getting to a point that I can feel my skin just chilling out.  Who's to say a big flare isn't coming for me come season change, but for summer I can see that my skin is pretty consistent now.

I do, do moisture withdrawal and since being home have gone back to not using lotions and am fine.  Even when I used them on my trip it was very minimal and for aesthetic purposes only! LOL

I rarely think about my skin each day.  There are times it looks a little dry and crusty, but it's nothing awful.  I don't need to wear scarves 24/7 and it seems that the sun has been of huge benefit to my skin.

For all those still thuggin it out, be encouraged.  TSW does burn out and get much better with time.  I used to hate hearing that, but after almost a year and a half I can agree time is a very big healer.

My main skin issues now are discolouration, though my tan has helped and elephant skin.  But I can see how that has improved in some areas.

Be encouraged folks!

Here are some photos from my trip

Tuesday, June 3, 2014

14 Month Steroid Free

Oh how good it feels to be in the double digits of withdrawal.

Just looking back at the hell of this time last year gives me shudders. Yet helps me appreciate how far I have come.

Summer has come and brought with it great skin for me.  While I am enjoying the sweet kisses of the sun rays, I am a bit nervous of what fall will bring!  I wonder if my skin is only better because of the good old vitamin D, or has time began to run its course??

I guess I won't know!  For now I am enjoying time outside.  I still continue MW.  I had a point where I thought I was going to stop cause everything felt like it was worse. Then I put a little cream on and experienced 'worse'. Lol

About a week later my skin calmed down.
I have been doing MW for 2+ months now.
My 'normal' skin is awesome. Quite clear the oils have returned. My skin has a natural shine it never had unless I used lotion.
My TSW effected skin is rarely dry and ashy.
Just looks a big lizard like. But that's from all the damage from scratching.

I have noticed some spots begin to recede. So it's hopeful.  My skin no longer stops me from doing anything. It's quite predictable. Even a couple weeks ago when it was flaring I was still able to go out and do what I needed to. I think I was just a bit emotional about what it looked like.

It's very important not to focus too much on how it looks. Though that's nearly impossible... Especially for a lady!
But when I just say 'what the heck' and embrace my skin, I am mentally in a better place. More recently I have started dressing up each day. You can see this blog for that post and challenge.

Do your best to just feel good about yourself. If you are right in the heat of battle...maybe this isn't your season. I spent many a season in my sweats and under a blanket...

But summer has come and for that I am thankful.
All my TSW warriors out there, keep on fighting the fight. You can do it!
And a shout out to Nikki who encouraged me a couple weeks ago when I was very down about my skin!  Having each other makes a big difference in the battle!

Here are some pictures of my skin!!